I began this blog and Brian’s website one week ago. During that time, I have been overwhelmed by the outpouring of support from family, friends and strangers.
It is a scary idea to open up your private world to the public.
The past seven days have brought well wishes, prayers and offers of support. Many have reached out with “my son has this condition,” or “my brother and nephew both have it,” or “I suffered these same symptoms my entire life.” Each person who shows an understanding of what we are dealing with is a blessing to me.
I apologize for not immediately responding to some of the emails, messages and phone calls. Quite honestly, I am overwhelmed. And, like I said in a previous post, some days are hard.
Even with all the support, it is hard not to feel alone.
But please, do not stop reaching out. Please continue to share Brian’s story with others. If all I accomplish is to bring a small amount of awareness to Eosinophilic Esophagitis, then I will feel like I made a difference.
Messages say that I am strong and that Brian is lucky to have me for a mom. I am humbled my these thoughts and they give me strength when I feel lost.
In addition to bringing awareness to EoE, I hope I can show others it is okay to be overwhelmed. It is okay to hurt when you are away from friends and family. It is okay to fall apart.
Just remember, there are so many out there who are fighting wars, and some of the battles may resemble your own.
I met a mother yesterday of an amazing young woman. Her daughter is fighting her own battles and is an image of strength. She may not be dealing with the same condition, but her mom has been through hospitals, specialists, feeding tubes and struggles. Five minutes of talking with her gave me renewed strength and, hopefully, a new source of information. I encourage others to learn more about this young woman and her mother by following “Kennedy’s Cause” on Facebook.
Everyone we meet has something to offer. Every story sent to me adds new insight. Every word of encouragement drives me forward.
Thank you for your support. Thank you for sharing our page. Thank you for reminding me that I am not alone, and that I can do this, even when I might forget.