Tonight marks two weeks since Brian had solid food.
During this time, he has been enjoying highly concentrated bottles of formula and water. Most days he may drink four 8oz bottles, and others, I’m lucky if I can get him to drink five.
I knew going into an elemental diet (formula only) would be difficult, especially when Brian is around other people. Last week, Brian and I were alone and it was easy to hide food from him. Over the last few days, we spent some time with friends I’ve known since I was a child and their little ones.
This is the first time since we arrived that Brian was around kids closer to his age.
The food issue was tricky at times, but for the most part, we worked out a system.
When it was time for the kids to eat, Brian took a nap, a bath, or watched a movie. We did our best to not eat in front of him and tried to explain to a three year old why she couldn’t show him her snacks.
Overall, it was a great lesson for me. I cannot keep Brian away from food all the time. So I will do my best to keep him distracted and attempt to make drinking a bottle exciting.
In addition to our food struggles, Brian has been dealing with a horrible eczema outbreak on his legs and arms. Before, doctors told me it was due to his EoE and eating something that caused a flare up. I don’t know how much I believe that considering he isn’t eating anything. If nothing else, it points back to the EoE diagnosis and that his poor body is doing everything it can to process what is happening.
I have mentioned many times how fortunate Matt and I are to have some amazing family and friends. We can feel the showering of support you are sharing with us and the prayers from all over the country. It means a lot to us to have so many people care about our family.
But tonight, I am unable to express how grateful I am to the family and friends who are making it possible for our family to be reunited.
In one hour Matt and Addi are landing in Philadelphia and my heart feels like it may burst with excitement. Just now Brian asked if we could go get sissy and daddy. I think he is as anxious to see them as I am.
Our family reunion will be brief (Addi starts school on Tuesday), but we will make the most of every moment we have together.
So for now, I am signing off to spend time with those I love the most. Thank you for your support and continuing to follow our story.