We just finished our appointment with the immunologist. Right now I have mixed emotions.
The good news is that Brian’s test results look good for his age, growth and development. I’m grateful for the meeting with the doctor to explain things, because from the initial appearance, I would have overreacted.
The immunologist wants us to monitor Brian’s temperature and do weekly lymph node checks. At the last visit his lymph nodes were enlarged, but today she was not concerned. After monitoring him closely, she wants to see us again in six months.
We discussed Brian’s various symptoms again, and she feels that while some seem to correspond with an immunology issue, more likely Brian’s endocrine system is the true culprit. She recommended that we try to see an endocrinologist at CHOP so all departments can collaborate together.
The request has led to me calling the endocrinology department and begging to be seen this week. Right now I’m anxiously waiting for a call back.
The logical part of me knows I should be happy with today’s appointment, where the emotional part is frustrated we flew across the country for positive test results. Still, a box has been checked. We will continue to monitor and hopefully endocrinology will be able to see us and more answers will be found.
Brian’s health does not fit in a perfect little package with a bow. It is complicated, which means finding answers will take time.
I am grateful for the thoughts, prayers and help we have received. While my emotions may get the better of me from time to time, I never regret the time spent with these specialists at such an amazing hospital.
More than anything, Brian sees today as a win, since there was no “pointy thing” in his arm.