Right Direction

Brian came through his endoscopy and colonoscopy like a champ.

Once we were able to wake him and feed him a baked potato, he was full of energy and ready to go home. Of course, as soon as he heard we were leaving, he asked if we were going to Target to get the garage.

We loaded up and headed to Target. Along the way Brian fell asleep and when I woke him up he was soaked. Thankfully I had our suitcase and was able to change him in the car, but the fresh clothes would be short lived.

We were in Target mere moments before Brian looked at me in a frightened way. That morning the doctors had examined his colon, large intestine and into the small, taking biopsies along the way. The after effects of the procedure were taking their toll and catching us both off guard. I grabbed a package of wipes and a package of underwear, and set to work cleaning him up. We were now on underwear number two, and he would go through three more before the night was over.

We ended the night in pjs at our hotel. Brian played happily with his new toy and I took the opportunity to relax a little. I ordered some Chinese and found the fortunes to be signs:

“A cautious person leaves no stones unturned” and “You are almost there.”

I took these to mean my constant quest for answers was on the right track, starting with an appointment with an immunologist.

Today we met with an immunologist and her team. After lots of questions and explanations, she decided to run some blood tests, including ones involving a possible auto immune disorder, which possibly would explain Brian’s thinning hair, paleness and other issues. She said the results would determine additional tests, but it would be ten days before we would know for sure.

I feel like I am stuck in a dark spot between wanting Brian to be okay and wanting the tests to show something wrong so we will have answers. This also means we have to decide if we should stay for the additional tests or return home Saturday and then head back to Philly next month. I was frustrated again with the lack of faith I have in the doctors back home.

Brian screamed through the blood draw and ended up falling fast asleep in the car. Meanwhile, I spoke with the GI nurse who said the endoscopy results were great, but the colonoscopy showed large amounts of inflammation. His doctor was unsure of the cause, but promised to look for answers.

Tomorrow we will meet with Brian’s allergist and nutritionist and hopefully receive even more answers.